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The OI Foundation provides medically verified information to families and healthcare professionals, funds new OI research and promotes public policy that supports people living with osteogenesis imperfecta.
The best way to understand OI is to get to know people who live with it every day. Here is your chance to meet some of the bright faces in the OI community.
The OI Foundation's annual Sweepstakes is now underway! Enter to win a cruise for two, new Amazon Kindle Fire, Powershot Elph Digital Camera or travel bag with one-touch handle system!
A Clinical Study of Heart Disease in Children and Adults who have OI
A research study of heart problems in people who have OI is currently recruiting child and adult participants. This trial is being conducted by the Osteogenesis Imperfecta Program at the Kennedy Krieger Institute, Baltimore, MD. For details about the study and a description of who is eligible, please click the link below.
The Rare Bone Disease Patient Network, co-chaired by OI Foundation CEO, Tracy Hart held a scientific meeting last month titled “Expanding Our Knowledge and Developing Strategies to Accelerate Research of Rare Bone Diseases”. The research summit was chaired by Dr. Jay Shapiro and Dr. Emily Germain-Lee of the Kennedy Krieger Institute. Click the link below to watch videos from this meeting.