照 顾者
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意 义[编辑]
一个人可能由于健康受损、丧失记忆、
技能 [编辑]
基本 原 则[编辑]
监测[编辑]
维持个人的 精神 愉悦 [编辑]
饮食协助[编辑]
吞咽
协助管理 药物[编辑]
家居 变化[编辑]
生活 安 排 [编辑]
居 家 安全 [编辑]
复杂难题[编辑]
停止 不 必要 的 治 疗[编辑]
对于
绝症
疗养
为个
应对失 智 症 [编辑]
行 为改变[编辑]
促进自我 照 顾[编辑]
“
如前
临床决策[编辑]
照 顾者的 压力[编辑]
如果
2021
照 顾者和 职业治 疗[编辑]
无偿照 顾者的 健康 [编辑]
无偿
职业
社会 与 文化 [编辑]
不同 国家 的 照 顾者[编辑]
IACO
照 护认证[编辑]
以美
社会 心理 [编辑]
对患
经济[编辑]
术语[编辑]
偶尔也会
另见[编辑]
参考 资料[编辑]
- ^ Informal Caregiver Law and Legal Definition. US Legal. [2020-08-17]. (
原始 内容 存 档于2022-10-04). - ^ Van Den Berg, Bernard; Brouwer, Werner B. F.; Koopmanschap, Marc A. Economic Valuation of Informal Care: An Overview of Methods and Applications. The European Journal of Health Economics. 2004, 5 (1): 36–45. JSTOR 3570100. PMID 15452763. S2CID 23720519. doi:10.1007/s10198-003-0189-y.
- ^ Caregiver Support. dhss.alaska.gov. [2021-03-31]. (
原始 内容 存 档于2022-06-15) (美国 英 语). - ^ Primary Care-giver Doctrine Law & Legal Definition. US Legal. [2 September 2012]. (
原始 内容 存 档于2017-03-21). - ^ Dorling Kindersley 2013,
第 10页. - ^ 6.0 6.1 6.2 6.3 6.4 6.5 6.6 6.7 6.8 Dorling Kindersley 2013,
第 144页. - ^ 7.0 7.1 Dorling Kindersley 2013,
第 148页. - ^ Dorling Kindersley 2013,
第 150-2页. - ^ 9.0 9.1 Dorling Kindersley 2013,
第 153页. - ^ 10.0 10.1 Dorling Kindersley 2013,
第 66页. - ^ 11.0 11.1 Dorling Kindersley 2013,
第 67页. - ^ 12.0 12.1 Dorling Kindersley 2013,
第 45页. - ^ Dorling Kindersley 2013,
第 43页. - ^ Dorling Kindersley 2013,
第 46-47页. - ^ Dorling Kindersley 2013,
第 47页. - ^ 16.0 16.1 16.2 16.3 Dorling Kindersley 2013,
第 56页. - ^ Ferguson; et al. The caregiver role in thromboprophylaxis management in atrial fibrillation: A literature review. European Journal of Cardiovascular Nursing. 2015, 14 (2): 98–107. PMID 25125352. S2CID 5469526. doi:10.1177/1474515114547647.
- ^ 18.0 18.1 18.2 18.3 Dorling Kindersley 2013,
第 14-15页. - ^ 19.0 19.1 Dorling Kindersley 2013,
第 30-31页. - ^ 20.0 20.1 American Society of Clinical Oncology, Ten Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Society of Clinical Oncology), 24 April 2014 [25 August 2014], (
原始 内容 存 档于2015-04-12) - ^ American College of Surgeons, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American College of Surgeons), September 2013 [2 January 2013], (
原始 内容 存 档于2013-10-27) - ^ American Society of Nephrology, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Society of Nephrology), 24 April 2014 [15 September 2014], (
原始 内容 存 档于2015-04-14) - ^ 23.0 23.1 23.2 23.3 23.4 AMDA – The Society for Post-Acute and Long-Term Care Medicine, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (AMDA – The Society for Post-Acute and Long-Term Care Medicine), February 2014 [10 February 2013], (
原始 内容 存 档于2014-09-13) - ^ 24.0 24.1 24.2 American Academy of Hospice and Palliative Medicine, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Academy of Hospice and Palliative Medicine), [August 1, 2013], (
原始 内容 存 档于2013-09-01) - ^ Heart Rhythm Society, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Association of Blood Banks), 24 April 2014 [25 July 2014], (
原始 内容 存 档于2015-04-14) - ^ Harper, Alexandra E.; Rouch, Stephanie; Leland, Natalie E.; Turner, Rose L.; Mansbach, William E.; Day, Claire E.; Terhorst, Lauren. A Systematic Review of Tools Assessing the Perspective of Caregivers of Residents With Dementia. Journal of Applied Gerontology. 2021-07-07, 41 (4): 1196–1208 [2022-10-04]. ISSN 0733-4648. PMID 34229505. S2CID 235758241. doi:10.1177/07334648211028692. (
原始 内容 存 档于2022-10-06) (英 语). - ^ The WHELD programme for people with dementia helps care home staff deliver person-centred care. NIHR Evidence (Plain English summary). 2020-11-26 [2022-10-04]. S2CID 240719455. doi:10.3310/alert_42713. (
原始 内容 存 档于2022-10-12) (英 语). - ^ Ballard, Clive; Orrell, Martin; Moniz-Cook, Esme; Woods, Robert; Whitaker, Rhiannon; Corbett, Anne; Aarsland, Dag; Murray, Joanna; Lawrence, Vanessa; Testad, Ingelin; Knapp, Martin. Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research. July 2020, 8 (6): 1–98 [2022-10-04]. ISSN 2050-4322. PMID 32721145. S2CID 225489651. doi:10.3310/pgfar08060. (
原始 内容 存 档于2022-10-08) (英 语). - ^ 29.0 29.1 29.2 29.3 29.4 29.5 29.6 29.7 American Geriatrics Society, Ten Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Geriatrics Society), [August 1, 2013], (
原始 内容 存 档于2013-09-01) - ^ 30.0 30.1 30.2 American Psychiatric Association, Five Things Physicians and Patients Should Question, Choosing Wisely: an initiative of the ABIM Foundation (American Psychiatric Association), September 2013 [30 December 2013], (
原始 内容 存 档于2013-12-03) - ^ Riegel B., Jaarsma T., Stromberg A. A Middle-Range Theory of Self-Care of Chronic Illness. Advances in Nursing Science. 2012, 35 (3): 194–204. CiteSeerX 10.1.1.682.479
. PMID 22739426. S2CID 1029333. doi:10.1097/ans.0b013e318261b1ba.
- ^ 32.0 32.1 Godfrey C.M., Harrison M.B., Lysaght R., Lamb M., Graham I., Oakley P. Care of self - care by other - care of other: The meaning of self-care from research, practice, policy and industry perspectives. International Journal of Evidence-Based Healthcare. 2011, 9 (1): 3–24. PMID 21332659. doi:10.1111/j.1744-1609.2010.00196.x.
- ^ 33.0 33.1 Lewis M.L., McBride C.M., Pollak K.I., Puleo E., Butterfield R.M., Emmons K.M. Understanding health behavior change among couples: An interdependence and communal coping approach. Social Science and Medicine. 2006, 62 (6): 1369–1380. PMID 16146666. doi:10.1016/j.socscimed.2005.08.006.
- ^ 34.0 34.1 34.2 Shahriai M., Ahmadi M., Babee S., MSc, Sadeghi M. Effects of a family support program on self-care behaviors in patients with congestive heart failure. Iranian Journal of Nursing and Midwifery. 2013, 18 (2): 152–157.
- ^ 35.0 35.1 Chen Z., Fan V.S., Belza B., Pike K., Nguyen H.Q. Association between social support and self-care behaviors in adults with chronic obstructive pulmonary disease. Annals of the American Thoracic Society. 2017, 14 (9): 1419–1427. PMC 5711401
. PMID 28719225. doi:10.1513/annalsats.201701-026oc.
- ^ Deek H., Chang S., Newton P.J., Noureddine S., Inglis S.C.; et al. An evaluation of involving family caregivers in the self-care of heart failure patients on hospital readmission: Randomised controlled trial (the FAMILY study). International Journal of Nursing Studies. 2017, 75: 101–111. PMID 28772186. doi:10.1016/j.ijnurstu.2017.07.015.
- ^ Mead, H., Andres, E., Ramos, C., Siegel, B., & Regenstein, M. (2010). Patient Education and Counseling 79(1), 69-76.
- ^ Boehmer K.R., Egginton J.S., Branda M.E., Kryworuchko J.; et al. Missed opportunity? Caregiver participation in the clinical encounter. A videographic analysis. Patient Education and Counseling. 2014, 96 (3): 302–307. PMID 24998721. doi:10.1016/j.pec.2014.05.016.
- ^ Boehmer K.R., Egginton J.S., Branda M.E., Kryworuchko J.; et al. Missed opportunity? Caregiver participation in the clinical encounter. A videographic analysis. Patient Education and Counseling 96(3), 302-307.; Clark, A.M., Spaling, M., Harkness, K., Spiers, J., Strachan, P.H., Thompson, D.R., Currie, K. (2017). Determinants of effective heart failure self-care: a systematic review of patients' and caregivers' perceptions. Heart. 2014, 100 (9): 716–721.
- ^ 40.0 40.1 Clark A.M., Spaling M., Harkness K., Spiers J., Strachan P.H., Thompson D.R., Currie K. Determinants of effective heart failure self-care: a systematic review of patients' and caregivers' perceptions. Heart. 2017, 100 (9): 716–721. PMID 24548920. doi:10.1136/heartjnl-2013-304852
.
- ^ 41.0 41.1 Rosland A.M., Piette J.D., Choi H., Heisler M. Family and friend participation in primary care visits of patients with diabetes or heart failure: Patient and physician determinants and experiences. Medical Care. 2011, 49 (1): 37–45. PMC 3712763
. PMID 21102357. doi:10.1097/mlr.0b013e3181f37d28.
- ^ Gallagher, S.G.; et al. Prior depressive symptoms and persistent child problem behaviours predict future depression in parents of children with developmental disabilities: The growing up in Ireland cohort study. Research in Developmental Disabilities. 2018, 80: 170–179. PMID 30032060. S2CID 51712153. doi:10.1016/j.ridd.2018.07.001.
- ^ Gallagher, S.G.; Hannigan, Ailish. Depression and chronic health conditions in parents of children with and without developmental disabilities: the growing up in Ireland cohort study. Research in Developmental Disabilities. 2014, 35 (2): 448–54. PMID 24361813. doi:10.1016/j.ridd.2013.11.029. hdl:10344/4354
.
- ^ Gallagher, Stephen; Phillips, Anna C.; Drayson, M; Carroll, D. Parental caregivers of children with developmental disabilities mount a poor antibody response to pneumococcal vaccination. Brain, Behavior, and Immunity. 2009, 23 (3): 338–46. PMID 18595654. doi:10.1016/j.bbi.2008.05.006
.
- ^ Gallagher, Stephen; Whiteley, Jenny. Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities. 2012, 33 (6): 2099–105. PMID 22771985. doi:10.1016/j.ridd.2012.06.007
.
- ^ Most people caring for relatives with dementia experience loneliness. NIHR Evidence (Plain English summary). 2020-07-22 [2022-10-04]. S2CID 243269845. doi:10.3310/alert_40575. (
原始 内容 存 档于2022-10-07) (英 语). - ^ Victor, Christina R.; Rippon, Isla; Quinn, Catherine; Nelis, Sharon M.; Martyr, Anthony; Hart, Nicola; Lamont, Ruth; Clare, Linda. The prevalence and predictors of loneliness in caregivers of people with dementia: findings from the IDEAL programme. Aging & Mental Health. 2021-07-03, 25 (7): 1232–1238 [2022-10-04]. ISSN 1360-7863. PMID 32306759. S2CID 216028843. doi:10.1080/13607863.2020.1753014. (
原始 内容 存 档于2022-11-22) (英 语). - ^ 48.0 48.1 48.2 W.Q.Lou, Vivian; kwan, Chi Wai; Chong, Ming Lin Alice; Chi, Iris. Associations Between Secondary Caregivers' Supportive Behavior and Psychological Distress of Primary Spousal Caregivers of Cognitively Intact and Impaired Elders. The Gerontologist. 23 December 2013, 55 (4): 584–94. PMID 24367070. doi:10.1093/geront/gnt156
.
- ^ Labrum TK, Solomon PL. Rates of victimization of violence committed by relatives with psychiatric disorders. Journal of Interpersonal Violence. 2017, 32 (19): 2955–2974. PMID 26231334. S2CID 23338445. doi:10.1177/0886260515596335.
- ^ Labrum T, Solomon PL. Physical elder abuse perpetrated by relatives with serious mental illness: A preliminary conceptual social–ecological model. Aggression and Violent Behavior, 2015
- ^ González-Fraile, Eduardo; Ballesteros, Javier; Rueda, José-Ramón; Santos-Zorrozúa, Borja; Solà, Ivan; McCleery, Jenny. Remotely delivered information, training and support for informal caregivers of people with dementia. Cochrane Database of Systematic Reviews. 2021-01-04, 1: CD006440. ISSN 1465-1858. PMC 8094510
. PMID 33417236. doi:10.1002/14651858.cd006440.pub3.
- ^ 52.0 52.1 Jellema, S. Valued activities and informal caregiving in stroke: A scoping review. Disability and Rehabilitation. 2019, 41 (18): 2223–2234. PMID 29661038. doi:10.1080/09638288.2018.1460625
.
- ^ 53.0 53.1 Kniepmann, K. Family caregiving for husbands with stroke: An occupational perspective on leisure in the stress process. OTJR: Occupation, Participation and Health. 2014, 34 (3): 131–140. PMID 24695365. S2CID 36786767. doi:10.3928/15394492-20140325-01.
- ^ Knecht-Sabres, L.J. Caregivers of Stroke Survivors: Exploring the Role of Spousal Caregivers through an Occupational Therapy Lens. Internet Journal of Allied Health Sciences and Practice.
- ^ Why support for unpaid carers matters. Health Service Journal. 19 May 2021 [4 July 2021]. (
原始 内容 存 档于2022-05-18). - ^ 56.0 56.1 Occupational therapy practice framework: Domain and process (3rd Edition). The American Journal of Occupational Therapy. 2014, 68 (1): S1–S48. doi:10.5014/ajot.2014.682006.
- ^ International Alliance of Carer Organizations (IACO). UIA. [2022-10-07]. (
原始 内容 存 档于2022-10-08). - ^ Certified Caregiver. Chron. [2012-06-06]. (
原始 内容 存 档于2022-10-08). - ^ Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. London, UK: Penguin
- ^ Emslie C., Browne S., MacLeod U., Rozmovits L., Mitchell E., Ziebland S. 'Getting through' not 'going under': A qualitative study of gender and spousal support after diagnosis with colorectal cancer. Social Science & Medicine. 2009, 68 (6): 1169–1175. PMC 2706322
. PMID 19195750. doi:10.1016/j.socscimed.2009.01.004.
- ^ Brittain K. R., Shaw C. The social consequences of living with and dealing with incontinence: A caregiver's perspective. Social Science & Medicine. 2007, 65 (6): 1274–1283. PMID 17509743. doi:10.1016/j.socscimed.2007.04.002.
- ^ Bevans M., Sternberg E. M. Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA: The Journal of the American Medical Association. 2012, 307 (4): 398–403. PMC 3304539
. PMID 22274687. doi:10.1001/jama.2012.29.
- ^ 63.0 63.1 Gillespie A., Murphy J., Place M. Divergences of perspective between people with aphasia and their family caregivers (PDF). Aphasiology. 2010, 24 (12): 1559–1575 [2022-10-04]. S2CID 143729609. doi:10.1080/02687038.2010.500810. (
原始 内容 存 档 (PDF)于2022-08-06). - ^ Bar-Tal Y., Barnoy S., Zisser B. Whose informational needs are considered? A comparison between cancer patients and their spouses' perceptions of their own and their partners' knowledge and informational needs. Social Science & Medicine. 2005, 60 (7): 1459–1465. PMID 15652679. doi:10.1016/j.socscimed.2004.08.003.
- ^ Horowitz A., Goodman C. R., Reinhardt J. P. Congruence between disabled elders and their primary caregivers. Gerontologist. 2004, 44 (4): 532–542. PMID 15331810. doi:10.1093/geront/44.4.532
.
- ^ Noble L. M., Douglas B. C. What users and relatives want from mental health services. Current Opinion in Psychiatry. 2004, 17 (4): 289–296. S2CID 72357604. doi:10.1097/01.yco.0000133832.42167.76.
- ^ Croteau C., Le Dorze G. Overprotection, 'speaking for', and conversational participation: A study of couples with aphasia. Aphasiology. 2006, 20 (2–4): 327–336. S2CID 145215323. doi:10.1080/02687030500475051.
- ^ 68.0 68.1 68.2 Moore, Helen; Gillespie, Alex. The caregiving bind: Concealing the demands of informal care can undermine the caregiving identity (PDF). Social Science & Medicine. 2014, 116: 102–109 [2022-10-04]. PMID 24996218. doi:10.1016/j.socscimed.2014.06.038
. (
原始 内容 存 档 (PDF)于2022-01-22). - ^ Power A. Caring for independent lives: Geographies of caring for young adults with intellectual disabilities. Social Science & Medicine. 2008, 67 (5): 834–843. PMID 18573581. doi:10.1016/j.socscimed.2008.05.023.
- ^ 70.0 70.1 70.2 Arno, PS; Levine, C; Memmott, MM. The economic value of informal caregiving. (PDF). Health Affairs. Mar–Apr 1999, 18 (2): 182–8. PMID 10091447. S2CID 44565524. doi:10.1377/hlthaff.18.2.182. (
原始 内容 (PDF)存 档于2019-02-23).
延伸 阅读[编辑]
- Dorling Kindersley. Caregiver's handbook 1st American. New York: Dorling Kindersley. 2013. ISBN 978-1-4654-0216-5.
- Mitnick, S.; Leffler, C.; Hood, V.; American College of Physicians Ethics, P. A. H. R. C. Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships. Journal of General Internal Medicine. 2010, 25 (3): 255–260. PMC 2839338
. PMID 20063128. doi:10.1007/s11606-009-1206-3.
- Carol Levine, ed. (2004) Always On Call: When Illness Turns Families into Caregivers (2nd ed.), Vanderbilt University Press for the United Hospital Fund (页面
存 档备份,存 于互联网档案 馆). ISBN 0-8265-1460-X - Dr. Marion Somers Elder Care Made Easier: Doctor Marion's 10 Steps to Help You Care for an Aging Loved One, Addicus Books, 2006. ISBN 1-886039-80-1
- Joyce Cavaye (2006) Hidden Carers, Dunedin Press, Edinburgh, ISBN 1-903765-66-8
- Bonnie Campbell McGovern (2007) Taking Care of Barbara: A Journey Through Life and Alzheimer's and 29 Insights for Caregivers. ISBN 0-595-40536-3 OCLC 145511953
- Ann Burack-Weissi, "The Caregiver's Tale: Loss and Renewal in Memoirs of Family Life", Journal of Marriage and Family, 69, no. 1 (2007): 271-272 ISSN 0022-2445
- Sylvia Barron Baca (2007) Caregiver Daily Journal Gardners Books ISBN 1-4303-2102-4 OCLC 176917554
- Maria M Meyer, Derr RN, Stanley, Tandberg (2014). Caregiving in the Comfort of Home: A Complete Guide for Caregivers. CareTrust Publications. ISBN 978-0-9851391-5-5
外部 链接[编辑]
- Becoming a Family Caregiver (页面
存 档备份,存 于互联网档案 馆), a guide available in English, Spanish, Chinese, and Russian
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